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Intersex people are virtually invisible in our society due to pathologization, shame and taboo. If intersex people have united at all, it is mainly in patient groups. Of the 8.24 million intersex people in Europe (1:90) an estimated 1.5% is a member of a patient or contact group. In Europe, OII Europe is the first contact organization for intersex people that works strictly from a human rights perspective. The invisibility of intersex persons is reason for many organizations to wait to add intersex to their policies. But for intersex persons, the lack of policy at organizations is actually reason to remain invisible. Organizations can best break this chicken/egg situation by clearly communicating that they support the wishes of international intersex organizations.